For Newly Diagnosed
If you have found the PLGA Foundation, no doubt you have just entered into a world where you never wanted to belong. We understand. Weve been there, too.
With so much new information and so many decisions to be made in such short order, it is no wonder parents and families feel overwhelmed and confused by the initial stages of the PLGA diagnosis. We encourage you to use this site to learn more about these childhood brainҠtumors.
No one can truly feel at home in a new place until good friends surround him or her. Our best friends are those we have much in common with. As we all know, PLGA is considered a rare or "orphan" disease and it is understandable that at times we all feel isolated.
One of the most important functions of the PLGA Foundation is to facilitate families getting to know each other. It is important that our parent members have friends that they can talk to about the stresses of surgery, complications, neurological deficits, treatment options, financial concerns, etc. We need friends who dont flinch when we use the words that are necessary when we discuss our childҒs diagnosis and medical challenges. So, we also encourage you to join our community by signing up for one of the online support groups , joining our mailing list , or contacting us.
You and I, along with the other members of the PLGA Foundation, never envisioned that we would be on this journey, but here we are. We welcome you to our network of education, information, support and advocacy and are glad to be your guides as you learn to navigate in this new place. You are not alone. Together we can fight PLGAs and find ways to help each other, and utimately find ways to help our children.