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Archived Articles and Videos

Title Author(s) Publication Date
Pediatric Low Grade Astrocytoma (PLGA) Press
PLGA Quest Sails to Raise Research dollars The Dana Farber Cancer Institute Jimmy Fund Newsletter Summer 2009
Family Answers Question of "Why Us?" with Sense of New Purpose The Dana Farber Cancer Institute DFCI, Impact Newsletter Spring 2009
Gifts Foster Development of New Treatments The Dana Farber Cancer Institute DFCI, Impact Newsletter Spring 2009
 Local Families Start Own Ride for Cancer Research  Steven Ryan  Wicked Local Needham  05/28/09
Pediatric low-grade gliomas and the need for new options for therapy (pdf) Ibrahim Qaddoumi, Iyad Sultan, and Alberto Broniscer Cancer Biology & Therapy 01/2009
Chappaqua Woman Fights Kids´ Brain Tumors (pdf)
CHAPPAQUA - Amy Weinstein, 43, said she remembered when she heard the news that her 3-year-old niece, Samantha, had a brain tumor. Online Article.
Danielle De Souza LoHud 10/13/08
Project Brain Child Selected by AMEX (pdf) Sara Farris EurekAlert 10/06/08
Pediatric study finds alternatives for radiation of low-grade brain tumors (pdf) Amy Weinstein PLGA Foundation Website 10/02/08
"Journey for Cure": Benefit raising funds to fight rare form of kids´ cancer (pdf)
Online Article.
Danielle De Souza Seacoastonline 09/17/08
Push for research, cures after Methuen girl is diagnosed with brain tumor (pdf) Jill Harmacinski The Eagle Tribune 06/17/08
CNN wants YOUR story (link)
CNN wants YOUR story...Help us RAISE awareness about PLGA and the children it effects! Please consider sharing your child's story about pediatric low grade astrocytoma.
CNN CNN 05/27/08
Color For A Cure Website Fights PLGA (pdf) Visit the Color for a Cure website at www.colorforacure.org.   PLGA Website 04/08
Encourage Oprah to consider a story on PLGA Kids. (pdf) Go to the Oprah website and request that they do a show on the PLGA Foundation, Hailey Meltz and the other families fighting this same battle.
  PLGA Website 01/24/08
Appleton parents share daughter's battle with brain cancer (pdf) M.P. King Appleton Post Cresent 01/11/08
How to save your own child (pdf) Frustrated by a lack of treatment options for kids, parents are funding research. Online Article. Elizabeth Cohen CNN.com/Health 12/27/07
Special Gift for Girl Comes From Unlikely Place (pdf) Cheryl Sherry Appleton Post Cresent 12/25/07
Shopping to Fight Childhood Cancer (link to video)   WFRV TV 10/24/07
Two Year Old Appleton, WI girl wages battle for her life (pdf) Cheryl Sherry Appleton Post Cresent 10/21/07
Funding for sick kids (link to video)
Elizabeth Cohen finds some parents who turn to do-it-yourself funding to treat their children's rare disease.
Elizabeth Cohen CNN 09/04/07
Ensuring Money You've Raised Goes to Help Your Sick Child (pdf)
Amy Marcus, focuses on the struggles of one family who faced and are conquering the challenges of ensuring that their fundraising efforts were going to be used for targeted research that would shed light on the disease that afflicted their child, JPA.
Amy Dockser Marcus The Wall Street Journal 01/30/07
Boston University students establish the first chapter of FightJPA, a nationwide group that raises money for research on juvenile pilocytic astrocytoma (JPA), a type of brain tumor in children. Jenna Nierstedt Daily Free Press 10/02/06
Riding To Fight Brain Tumors (pdf)
The parents of a 4-year-old boy who has a rare brain tumor have organized a cycling benefit Sunday to raise money to combat the disease.
Richard C. Lewis Boston Globe 05/18/06
Putting Mettle to Pedals to Save a Boy's Life (pdf).
An article telling the story of TJ and the Brain Tumor Society's Ride for Research.
Carolyn Thorton Providence Journal 05/11/06
Children's Brain Tumor Press
Mutation linked to pediatric brain tumor may pave way for targeted treatment Michael Purdy Washington University in St. Louis Press 10/29/09
They're Making the Best of It (pdf)
Mother organized "Pediatric Brain Tumor Awareness Day" to raise money and awareness for pediatric brain tumor research.
M. English The Colonial News 10/13/06
A Cry in the Dark (pdf)
When a rare cancer strikes, a patient has few places to turn.
Amy Dockser Marcus The Wall Street Journal 03/20/06
Pediatric Brain Tumor Survivors and Late Effects (pdf)
What happens after treatment? The aftermath of current treatments for pediatric brain tumors.
Maggie Fox Reuters 08/22/05
Emily's Story Part 1   Part 2   Part 3 (pdfs)
A series of articles "chronicling how a young woman disabled by brain tumors came to terms with her first year at Harvard, and how Harvard came to terms with her."
Thomas Farragher Boston Globe 06/19/05
Children with Brain Tumors Don't March (pdf)
An article about the pain everyone feels following the diagnosis of a brain tumor, even doctors.
Michael Arnold Glueck & Robert J. Cihak Newsmax.com 05/06/05
Parents Face Painful Choice In Treating Childhood Cancer (pdf)
New Brain-Tumor Protocol Highlights Growing Tradeoff Between Survival, Side Effects
Amy Dockser Marcus The Wall Street Journal 03/01/05
Other Brain Tumor Related Press
Pushing Back When Insurers Deny Coverage (pdf)  Online Article. Anna Wilde Mathews The Wall Street Journal 09/25/08
Cancer Scientists Lament Funding (pdf) According to the recent Wall Street Journal article, our children's futures are in OUR hands. With overall cancer research dollars flat over the last few years, there is no indication that this will change going forward. If we want to find new, less invasive, less toxic treatments and a cure for our children....we will have to raise the money ourselves. Marilyn Chase The Wall Street Journal 05/31/08
House Establishes May as Brain Tumor Awareness Month (pdf)
House Passes Schakowsky/Roskam Resolution Establishing Brain Tumor Awareness Month
Peter Karafotas On the Hill 05/23/08
Pitt gets money to fight brain tumors (pdf)   The Tribune Review 04/24/08
These Benefactors Do Homework As Charities Fawn (pdf) and Online Article. Amy Merrick The Wall Street Journal 03/04/08
National Institutes of Health, Office of Rare Diseases, How to handle Orphan Diseases (pdf)
The Director of NIH, ORD talks with a WSJ reporter about the challenges of testing drugs and treatments for orphan diseases, illnesses that affect only a tiny proportion of people.
Amy Dockser Marcus The Wall Street Journal 01/29/07
Expansive Effort Is Begun to Study Rare Diseases (pdf)
The National Institutes of Health has started the first of what will eventually be about 50 clinical studies looking into a variety of rare diseases and disorders.
Jennifer Corbett Dooren Wall Street Journal 05/16/06
Next Chapter: After Leukemia, Family Struggles To Define "Normal" (pdf)
Jack Streeter, 8, Joins Ranks Of Cancer Survivors Coping After Treatment --- The Challenge of Kickball
Amy Dockser Marcus Wall Street Journal 06/09/04
Bloodless Revolution (pdf)
Imagine an operating room requiring no sterilization because there are no wounds, where doctors don't wear scrubs because there is no blood, where anesthesia is unnecessary because there is no pain...
Harbour Fraser Hodder Harvard Magazine 11/00